CARE Registry: Giving AAPIs a Voice Through Research

Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.

As of February 21, 2022, 7,649 people have signed up to increase AAPIs' representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
NEW! Hindi (हिन्दी) Website now available!
Samoan (Sāmoa)
Watch our 30 second animated videos in
16th Annual Chinese Alzheimer’s Forum

Saturday, March 12, 2022 @ 10AM –12:30PM PT  
More than 6 million Americans are living with Alzheimer’s. By 2050, this number is projected to rise to nearly 13 million. Join us to learn more about Alzheimer’s disease, advances in Alzheimer’s research, and a life course approach to dementia prevention.
 
This event is presented in Mandarin.


If you have any questions or comments or need help registering, please contact Peining Chang at pchang@alz.org or (408) 372-9943.  

Alzheimer’s Association is a CARE community partner. 
What's New in Alzheimer's Research 

Monday, March 14, 2022 @ 09:30AM PT 
Join Special Guest Congresswoman Doris Matsui in learning the latest in Alzheimer’s research from Dr. Oanh Meyer (CARE co-Investigator). Dr. Meyer, Associate Professor of Neurology at UC Davis School of Medicine and leader of Research Education at the UC Davis Alzheimer’s Disease Research Center, will share updates on the U.S. POINTER Study, including the vital role that diverse clinical trial participants play in moving Alzheimer’s and dementia research forward. 

This event is presented in English.


If you have any questions or comments, please call (800) 272-3900.

Alzheimer’s Association is a CARE community partner. 
The Latest on Brain Health 

Tuesday, March 15, 2022 @ 12-1:30PM PT 
It is never too late nor too early to have a healthy lifestyle. Join Dr. Marian Tzuang (CARE Research Analyst) and Dr. Boon Lead Tee (CARE Community Advisory Board member) to learn healthy habits to love your brain and reduce the risk of cognitive decline, and the importance of your voice in research. 

This event is presented in Mandarin.


If you have any questions or comments or need help registering, please contact Peining at pchang@alz.org or (408) 372-9943. 

Alzheimer’s Association is a CARE community partner. 
A Heart to Heart Conversation  

Thursday, March 17, 2022 @ 12 – 1:30PM PT  
Caregivers of Alzheimer’s and dementia may face special challenges. Join us to learn about how to stay connected with our loved ones through different stages of the disease, understand what their behaviors mean, and get tips on how to meet their needs.  

This event is presented in Mandarin.


For more information, please contact Peining at pchang@alz.org or (408) 372-9943. 

Alzheimer’s Association is a CARE community partner. 
Senior Planet @Avenidas Multilingual
Technology Program 

Every Thursday @9:00-10:00AM PT (Mandarin) 
Every Friday @ 1:00 pm – 2:00PM PT (Vietnamese)

This series of lectures will be offered weekly, via Zoom. Each one-hour session will be taught in English with either Chinese or Vietnamese translations, and materials will be translated for participants. 

You will learn how to: 
  • Browse websites 
  • Use Zoom to host videos calls with friends and family 
  • Use email 
  • Shop online safely 

Pre-registration is required.

To enroll in this series, please call (408) 975-2339 or email ACCC@avenidas.org or senior.wellness@aaci.org, and include your name, email address, and phone number.

If emailing, please put either “Mandarin Multilingual Technology Program” for the Mandarin program or “Vietnamese Multilingual Technology Program” for the Vietnamese program in the subject line. Once you complete your registration, you will receive an email confirmation with the Zoom link and instructions for joining the class. 

AARP is a CARE community partner. 
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
Caring for the Caregivers: An Alzheimer Disease Research Center Call to Action 
Dr. Oanh L. Meyer (CARE Co-Investigator) was among the scholars who contributed to a paper published in the journal Alzheimer’s Disease and Associated Disorders. The authors advocated for more engagement and support to dementia family caregivers at the Alzheimer’s Disease Research Centers. Read more here.
Caring for the Caregivers: An Alzheimer Disease Research ...

Currently, over 16 million dementia caregivers in the US provide over 18 billion hours of care. As the number of persons living with dementia increases, so too will the number of family caregivers. Given the projected steady growth in caregivers...

Read more
pubmed.ncbi.nlm.nih.gov
NAPCA Call Center is Available
The National Asian Pacific Center on Aging (NAPCA) Call Center connects limited English proficiency (LEP) Asian American, Native Hawaiian, and Pacific Islander (AANHPI) elders (55yrs+) and family caregivers to mainstream providers. Bi-lingual Community Resource Specialists provide in-language information and referral to: 
  • Aging services (e.g., meals on wheels, adult daycare, transportation, etc.), 
  • Medicare and benefit programs,  
  • Supportive services for family caregivers, and 
  • COVID-19 vaccinations and education. 

The Call Center is available nationwide. Contact us Monday – Friday from 8:30am – 5:00pm PST. 
  • English: 1-800-336-2722 
  • Cantonese: 1-800-582-4218 
  • Mandarin: 1-800-683-7427 
  • Vietnamese: 1-800-582-4336 
  • Korean: 1-800-582-4259 
Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages. 

The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email acad@ucsf.edu.
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

In January 2022, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144. 
Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197.

CARE Intern: Colette Kirkpatrick
In her feature on the UC San Diego Global Health Program Blog, Colette shares her experience about working as an intern with the CARE Registry.

Colette discusses what her role entails, covers what leading the CARE Ambassador Program is like, and touches on challenges and highlights of her experience. She shares what she has learned throughout her time with CARE and ties in how she was able to her pursue her passion for global health.
Colette Kirkpatrick is a fourth-year Global Health and Communications double major at University of California, San Diego, is one of CARE's interns, and is the president of the CARE Ambassador Program.

"I'll never forget what it feels like to be surrounded by people who really care about what they're working on. The people I get to work with genuinely love what the CARE Registry does and are willing to work above and beyond for the betterment of the team. The CARE Registry opened my eyes to what my ideal working environment would look like."
My mother was a very smart person. She had a quiet strength about her, and she was also very meek.... I knew her Alzheimer’s was very advanced when she would see me, smile like she recognized me, and then go back to not really knowing who I was. She would usually cry when I left for home as if she knew her daughter was leaving.
I honestly don’t like talking about my mom’s struggles to my family, but when the topic does come up, I don’t avoid it and I have an open and honest conversation with anyone in my family. I haven’t had the chance to talk much about dementia with people outside my immediate family. Research informed my family and I about what the best course of action for my mother was. 
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