CARE Registry:
Giving AANHPIs a Voice Through Research

Currently, AANHPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPIs to various types of research.

As of May 30, 2022, 8,579 people have signed up to increase AANHPIs' representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimerā€™s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
NEW! Hindi (ą¤¹ą¤æą¤Øą„ą¤¦ą„€) Website now available!
Samoan (Sāmoa)
Watch our 30 second animated videos in
Senior Planet @ Avenidas Multilingual
Technology Program  

Every Thursday @ 9:00 ā€“ 10:00am PST (Mandarin) 
Every Friday @ 1:00 pm ā€“ 2:00pm PST (Vietnamese)
From April 14th through June 17th
This series of lectures will be offered weekly, via Zoom. Each one-hour session will be taught in English with either Chinese or Vietnamese translations, and materials will be translated for participants. 

You will learn how to: 
  • Browse websites 
  • Use Zoom to host videos calls with friends and family 
  • Use email 
  • Shop online safely 

Pre-registration is required.

To enroll in this series, please call (408) 975-2339 or email ACCC@avenidas.org or senior.wellness@aaci.organd include your name, email address, and phone number.

If emailing, please put either ā€œMandarin Multilingual Technology Programā€ for the Mandarin program or ā€œVietnamese Multilingual Technology Programā€ for the Vietnamese program in the subject line. Once you complete your registration, you will receive an email confirmation with the Zoom link and instructions for joining the class. 

AARP and AACI are CARE community partners. 

ā€œFacing Alzheimer's and Dementia Togetherā€
Webinar Recording 

On Wednesday, May 24th , Dr. Van Ta Park ā€” CAREā€™s Principal Investigatorā€”was a panelist for the Alzheimerā€™s Associationā€™s interactive panel discussion about the impact of Alzheimerā€™s disease in Asian American communities, research opportunities, care and support resources, and more.

Listen to the full recording of the webinar here
CARE Tabling at New India Bazaar in Fremont, CA 

On Sunday, May 29th, a couple of our CARE staff members came out to table at an Indian grocery store ā€“ New India Bazaar ā€“ in Fremont, California. 

Thank you to New India Bazaar for letting us greet your customers and thank you to everyone who stopped by our table! 
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply, click HERE or scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
New publication discusses experiences and perceptions of dementia in Vietnam and among
the Vietnamese diaspora
Dr. Ladson Hinton (CARE Co-Investigator from University of California Davis) was among the scholars who contributed to a paper published in the Aging & Mental Health journal which dives into the experiences and perceptions of dementia in Vietnam and among the Vietnamese diaspora. 
Experiences and perceptions of dementia in Vietnam and...

Objectives: This paper aimed to review and synthesise the qualitative research evidence on the experiences and perceptions of dementia in Vietnam and among the Vietnamese diaspora. Methods: Systematic searches were conducted in June 2019 using...

Read more
www.tandfonline.com
CARE's 2022 Brief Report & Executive Summary
are now available

Read and share an organized overview of CAREā€™s purpose, partners, participant demographic, status with referral requests from research investigators, outreach activities, and next steps.  
NAPCA Call Center is Available
The National Asian Pacific Center on Aging (NAPCA) Call Center connects limited English proficiency (LEP) Asian American, Native Hawaiian, and Pacific Islander (AANHPI) elders (55yrs+) and family caregivers to mainstream providers. Bi-lingual Community Resource Specialists provide in-language information and referral to: 
  • Aging services (meals on wheels, adult daycare, transportation, etc.)
  • Medicare and benefit programs
  • Supportive services for family caregivers
  • COVID-19 vaccinations and education

The Call Center is available nationwide. Contact us Monday ā€“ Friday from 8:30am ā€“ 5:00pm PST. 
  • English: 1-800-336-2722 
  • Cantonese: 1-800-582-4218 
  • Mandarin: 1-800-683-7427 
  • Vietnamese: 1-800-582-4336 
  • Korean: 1-800-582-4259 
Anonymous Online Form Available in 29 Languages to Report Violence Against AANHPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American, Native Hawaiian, and Pacific Islander (AANHPI) community members. The in-language online report form will be fully anonymous and available in 29 AANHPI languages. 
ļ»æ
The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimerā€™s Disease (ACAD)
ļ»æis looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimerā€™s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimerā€™s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

All participants will be compensated for their time and effort.  

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email acad@ucsf.edu.
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

ļ»æIn January 2022, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144. 
Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197.

CARE Ambassador: Brandon Lien

"Working at CARE has been and continues to be an amazing experience. I enjoy interacting with our community, raising public awareness of AANHPI issues, and sharing our stories. Itā€™s rewarding to know that our work with the AANHPI registry will positively impact both current and future generations."
Brandon Lien is a rising senior at Mountain View High School and is one of the first CARE ambassadors. CARE has allowed him to give back to his community while pursuing his interests in public health policy and biology.

During the COVID pandemic, he hosted several virtual outreach events, and is now looking forward to his first in-person outreach event next weekend. 

Brandon also has a Youtube Channel called NewsForTeens and has created an in-depth video explaining CARE! Click on the link below to watch and share.
"For as much as I know, this is the circle of life. Iā€™ve seen my parents care for their parents, and so it is my turn. I really donā€™t wish this on my children, and donā€™t want to be a burden on them. Research is very important to help people live out a dignified life. Iā€™m angry because I feel they are being robbed of fully enjoying a wonderful fulfilled life that they both deserve."


"Itā€™s funny; just last night my mom who doesnā€™t say much anymore, said to me, ā€œIā€™m glad you are here, you are such a good daughter.ā€ I gave her a new doll that she could tie the shoes, buckle and button the clothes. Something more interactive for her. I asked what the doll's name is. She said June. These are the moments that give me the energy to keep up going."
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