CARE Registry:
Giving AANHPIs a Voice Through Research

Currently, AANHPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPIs to various types of research.

As of April 24, 2022, 8,164 people have signed up to increase AANHPIs' representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
NEW! Hindi (हिन्दी) Website now available!
Samoan (Sāmoa)
Watch our 30 second animated videos in
10 Warning Signs of Alzheimer's – Webinar 

Thursday, May 12th @ 12pm 1:30pm PST

Alzheimer’s and other dementias cause memory, thinking and behavior problems that interfere with daily living. Join us to learn how to recognize common signs of the disease; how to approach someone about memory concerns; the importance of early detection and benefits of a diagnosis; possible tests and assessments for the diagnostic process, and Alzheimer’s Association resources. 

This event is presented in English.  


If you have any questions or comments or need help registering, please contact Peining at pchang@alz.org or (408) 372-9943. 

Alzheimer’s Association is a CARE community partner.  

Asian American, Native Hawaiian and
Pacific Islander (AANHPI) Birth Equity Conference  

Monday, May 16th @ 10am – 3pm PST 
Online & In-person 
Frances C. Arrillaga Alumni Center at Stanford 

In California, 16% of births are among Asian American, Native Hawaiian, and Pacific Islander (AANHPI) families, with significant disparities in quality of care for mothers and babies. The AANHPI Birth Equity Conference will gather key stakeholders to improve outcomes for AANHPI families.  

Attendees will: 
  • Exchange knowledge and experiences 
  • Define research and improvement priorities 
  • Develop a network of collaborators including community leaders, researchers, and clinicians 
This event is presented in English. 
 

This conference is co-sponsored by The Stanford Center for Asian Health Research and Education (Stanford CARE), a CARE partner. 
Decoding the Brain through Calligraphy 

Saturday, May 21st @ 10am 12pm PST

We would like to invite you to participate in an upcoming online event cohosted by UCSF Memory and Aging Center and New York Mount Sinai Hospital Alzheimer’s Disease Research Center. 

This event aims to promote brain health education through creative and artistic activities, and promote a healthy brain lifestyle to the public. 

This calligraphy appreciation event focuses on three themes: Dementia, Brain Health, and the Asian American Community. Participants can choose one or more themes for the calligraphy artwork. The artwork can be presented in written form (e.g. poetry), graphic form (e.g. painting), or both. The winner will receive a $100 gift card, a brain gift bag, and an award certificate. For more information, click here

This event is presented in Mandarin.


 UCSF Memory and Aging Center is a CARE partner.
Have You Forgotten To Take Care of Your Brain Health?
 
Saturday, May 21st @ 5 6:30pm PST 

For centuries, we’ve known that the health of the brain and the body are connected. But now, science is able to provide insights into how to make lifestyle choices that may help you keep your brain and body healthy as you age. Join us to learn about healthy aging, the latest in Alzheimer’s and dementia research, and what matters for people living with dementia and their caregivers. 
This event is presented in Mandarin.  


Alzheimer’s Association is a CARE community partner. 
Facing Alzheimer’s and Dementia Together 

Tuesday, May 24th @ 11am PST 

In honor of Asian American and Pacific Islander Heritage Month, please join us for an interactive panel discussion about the impact of Alzheimer’s disease in Asian American communities, research opportunities, care and support resources, and more. Amara Sohn-Walker, CNN anchor and Alzheimer’s Association Celebrity Champion, will serve as the discussion moderator.  

Panelists are Dr. Van Ta Park (CARE Principal Investigator) and Edie Yau, Director of Diversity, Equity & Inclusion Engagement for the Alzheimer's Association, Northern California and Northern Nevada Chapter, and CARE Community Advisory Board Member.

This event is presented in English.


Alzheimer’s Association is a CARE community partner.   
Senior Planet @Avenidas Multilingual
Technology Program 

Every Thursday @ 9:00 10:00am PST (Mandarin) 
Every Friday @ 1:00 pm – 2:00pm PST (Vietnamese)
From April 14th through June 17th

This series of lectures will be offered weekly, via Zoom. Each one-hour session will be taught in English with either Chinese or Vietnamese translations, and materials will be translated for participants. 

You will learn how to: 
  • Browse websites 
  • Use Zoom to host videos calls with friends and family 
  • Use email 
  • Shop online safely 

Pre-registration is required.

To enroll in this series, please call (408) 975-2339 or email ACCC@avenidas.org or senior.wellness@aaci.org, and include your name, email address, and phone number.

If emailing, please put either “Mandarin Multilingual Technology Program” for the Mandarin program or “Vietnamese Multilingual Technology Program” for the Vietnamese program in the subject line. Once you complete your registration, you will receive an email confirmation with the Zoom link and instructions for joining the class. 

AARP and AACI are CARE community partners. 
Featured on ABC10:
CARE Co-Investigator, Dr. Oanh Meyer, examines impact of wartime trauma of Vietnamese Americans
First-of-its-kind study to delve into wartime trauma on...

The cognitive health of 500 Vietnamese Americans from Northern California will be tracked over 5 years in a first-of-its-kind study. SACRAMENTO, Calif. - Along a two-mile stretch of Stockton Boulevard in South Sacramento, you can sense the pulse...

Read more
www.abc10.com
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
CARE's paper is now published!
We are excited to share that our article, "The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer's disease and related dementias, aging, and caregiver‐related research in Alzheimer's & Dementia," has been published in Alzheimer's & Dementia: The Journal of the Alzheimer's Association! 

Commentary in the Journal of the National Cancer Institute suggests racism affects Asian American
cancer inequities 
Dr. Van Ta Park (CARE Principal Investigator) was among the scholars who contributed to a collaborative research article titled, "Charting a Path Towards Asian American Cancer Health Equity: A Way Forward," recently published by the Journal of the National Cancer Institute (JNCI). 

CARE's 2022 Brief Report & Executive Summary
are now available

Read and share an organized overview of CARE’s purpose, partners, participant demographic, status with referral requests from research investigators, outreach activities, and next steps.  
Dr. Van Ta Park now serves as an Associate Editor for the journal, Alzheimer's & Dementia: Translational Research & Clinical Interventions
This journal seeks to bring forth the full scope of explorations between basic research on treatment discovery and clinical studies for Alzheimer's and all related dementia diseases. Congratulations to Dr. Park for this wonderful achievement! 
NAPCA Call Center is Available
The National Asian Pacific Center on Aging (NAPCA) Call Center connects limited English proficiency (LEP) Asian American, Native Hawaiian, and Pacific Islander (AANHPI) elders (55yrs+) and family caregivers to mainstream providers. Bi-lingual Community Resource Specialists provide in-language information and referral to: 
  • Aging services (meals on wheels, adult daycare, transportation, etc.), 
  • Medicare and benefit programs
  • Supportive services for family caregivers
  • COVID-19 vaccinations and education

The Call Center is available nationwide. Contact us Monday – Friday from 8:30am – 5:00pm PST. 
  • English: 1-800-336-2722 
  • Cantonese: 1-800-582-4218 
  • Korean: 1-800-582-4259 
  • Mandarin: 1-800-683-7427 
  • Vietnamese: 1-800-582-4336 
Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages. 

The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

All participants will be compensated for their time and effort.

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email acad@ucsf.edu.
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

We are currently recruiting volunteers who meet the following requirements: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144. 
Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197.

CARE Staff Tabling at Nikkei Matsuri
On Sunday, April 24, 2022, several UCSF CARE staff members came out to table at the Nikkei Matsuri Festival, hosted in San Jose Japantown! The festival showcases the contributions and cultural achievements of the Japanese American community, sharing various cultural exhibits and performances.

For the past 45 years, the all-volunteer Nikkei Matsuri Committee has worked “To share and preserve the culture and heritage of the Japanese American traditions through the presentation of food, arts and crafts, performing arts, demonstrations and cultural exhibits in the heart of historic San Jose Japantown.” 

During our tabling, we met with June Yasuhara, a CARE enrollee who kindly shared her caregiving story with us. Her caregiving story was featured on the flyer which Charlie, one of our interns, designed! You can read her story by reading the Caregiver Spotlight section below.

Thank you to the Nikkei Matsuri Committee for letting us be a part of this wonderful community event and thank you to everyone who stopped by our table!
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